I am not a fan of seizures.
And I have forgotten what it's like to have a child with uncontrolled seizures because for 2 1/2 years we had good seizure control on the diet.
Bettter-than-I-thought seizure control.....
Now we don't really have good control and I miss it.
Alas, time to tweak another med.
Samantha had a good two weeks. Her lipase has been out-of-control, through the roof high but she has been in good spirits. So, we have been in good spirits.
But today, in the midst of a crazy rainstorm and bumper to bumper traffic on I-25, she had a seizure, and another seizure, and another. I pulled off to give her rescue med but it was like throwing a glass of water at a burning house.
Poop.
When your rescue med doesn't work, it's time to call in the professionals. So I did. We were told to turn back around and head to Children's
So we did, and proceeded to battle bumper-to-bumper traffic going South.
I swear, families who have seizures should have a little siren on top of their car to get them through crazy traffic.
I would only use my little siren during seizure times.
I promise.
Upon arriving at Children's we found out Samantha had a temp. Possibly the reason for the seizures? Who knows.
We do know we're camping out on floor #8 tonight. Hoping for a quick stay.
XO-
Us
3 comments:
I'm sorry friend. We're going to be down in Denver tomorrow. If you are still there, let me know if you need anything.
I am so sorry to hear the dreaded S word! I hope the stay is short and the new medication combos work well. This has got to be very stressful. Hang in there!
Grrr. Be gone, Seizures!
I think you should get a patent on that siren idea. I sense a funky etsy site featuring Samantha's Mom's Seizure Sirens in your future.
It's worth a shot, right?
I hope you're in and out in no time.
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