Sunday, September 16, 2018

JOY! And mitochondrial awareness week :)

It is Mitochondrial Awareness Week.

Are you ready?

Are you ready for the onslaught of your friends posting about this crazy disease you have never heard of or maybe heard of in a bio class your sophomore but fell asleep to because it was so boring???

That is this week

We post because we have lost children, we have lost loves, we have lost futures, we have lost strength. We have cried, raged, cursed, begged, borrowed.......

But there is more to that.

We post because we are community. We are not alone. We have hope.

And without hope we are nothing.

Yesterday I went to a wedding of our Mito Mama Angela, her new husband and their mito warrior, Sweet Cal.
Cal and I approve of the union.
I was a lovely wedding but so much more than that.
This disease tears people apart. It ruins lives. It ruins families. It takes joy, stomps on it, spits a giant loogie and walks away.
Mitochondrial Disease is an asshole.
But we are more. We are so much more. We are hope. We are strength. We are community. We are loud.
And in spite of all the obstacles, there is still so much joy to be found
Ya'll make me proud.
And joyous.
Thank you. 



54613458656 said...


kate said...

As a sign of gratitude on how my son was saved from autism, i decided to reach out to those still suffering from this.
My son suffered autism in the year 2013 and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he always have difficulty with communication,and he always complain of poor eye contact  . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and they left the contact of this doctor who have the cure to autism . I never imagined autism  has a natural cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months time he was fully okay even up till this moment he is so full of life.autism  has a cure and is a herbal cure,you can contact the doctor for more info on on how to get this medication, Thanks.

Trauma should be the hall pass to life's other issues. Someone should tell the hall monitor

I posted something cryptic on Facebook Saturday. It caught a lot of attention from my tribe but it really wasn’t a big deal…. nothing ...