How can you not love Churchill?
He also said, "never give in, never give in, never, never, never"
and my favorite...
"We are all worms. But I do believe I am a glowworm."
Tonight my war is with seizures. After 24 hours, seizures every ten minutes, I.V. Keppra,5 doses of Ativan, one dose of Phenytoin and a threat to go down to the PICU if we did not 'behave' I feel like tonight.....perhaps...we have won the battle.
Won the battle but I am not confident we have won the war.
Room 831 is command central where the seizure enemy is monitored, watched for aggressive behavior and we are in constant contact with our 'troops'.
We have lost some soldiers, we no longer have our all important ketones.
I am realizing more and more that those ketones were some pretty heavy duty little seizure fighters. But that's okay, we will assess our losses, move on and perhaps employ some new seizure meds to help Team Samantha.
Our goal? A seizure free night. Doesn't sound like a lot but battles are played out one move at a time.
As Winston says.....“It is a mistake to look too far ahead. Only one link in the chain of destiny can be handled at a time.”
....To tonight.
Love,
The Glowworm
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6 comments:
I come from a long line of Churchill fans. My niece is named Clementine!
Does room 831 mean that you are back at Children's? I am so sorry that the war is raging and battles are being fought.
Another quote from that time "Keep Calm and Carry on." No doubt you have seen posters and buttons with this saying. It was a poster produced, but never hung, during World War Two. It was rediscovered in 2000. The posters were created in case the Germans succeeded in their invasion of Britain.
I love the saying, perhaps a good life motto? But sometimes it is just so very hard to keep calm when a war is on...or when the unwanted invade. GO AWAY SEIZURES! Samantha and her family want to "carry on now"...thank you!
Crap.
Damn that Seizureville. I hate that place! Keep fighting, Mama. <3
Sometimes, that's all you can do . . . I wish I could magic it all better for you and Samantha!
Love and hugs,
Melissa
I hope your night went well :) Thinking of Sammer and sending anti-seizure juju room 831 way.
I'm thinking about and praying for you and Sam. I know how awful it all is -- love and peace and ease to you both.
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