Thursday, April 15, 2010

Journey in the Unknown

Today we came to the conclusion that it's time to take Samantha off the ketogenic diet. It's been a good run; 2 1/2 years on this super high-fat, seizure controlling diet. But 2 1/2 years of eating nothing but olive oil, butter, cream and an occasional teeny, tiny carb has had its toll on her body.

Her pancreas is inflamed, her blood is lipemic, her cholesterol is through the roof and she is very lethargic.

An ultra sound today revealed that her pancreas is in worse shape than 2 months ago....time to make a change.

We will start the wean tomorrow; slowly introducing her new, carb friendly diet.

What does this mean?

We have
great seizure control on the diet and we have not had to make a med change. If she weans off, we have no idea how her seizure activity will be.

If she stays on the diet, she will have seizure control but it will continue to compromise her liver, pancreas and kidneys.

Great options, huh?

So tomorrow, 8:00 am, it begins. We will wean her in the hospital so we have access to the big-dog seizure meds and super-smart specialists should we need them.

I found myself at Super Target looking for new underwear after my conversation with the doctors. Myself and I mulled over this by the briefs.....

What are you afraid of?

That she will seize, and seize and seize and we won't be able to stop it. That the diet was the one thing giving us an ounce of control in Samantha's life.

What if it's not? What if she has some seizures, we adjust her meds, and she does okay? What if, for the first time in 2 1/2 years, you could actually give her a healthy, blended diet, with food that is good for her body and not hard on her system?

What if she's not okay?

Well what if she is?


Myself had a point....we just don't know and we just need to try....for the health of Samantha's very important organs....we need to try.

So I bought myself a pair of neon-green polka dotted panties. I will call them my big-girl, anti-seizure pants.

I will wear them tomorrow....and the next day....and the next.

7 comments:

Deana said...

(((((hugs))))) You're in my thoughts and prayers tonight!!! I hope it all goes smoothly tomorrow!

Amanda said...

Hey, sweetpea...please let me know when you need a new spin on the paties. Day 4 Sammer may be sick of smelling you! I think you rationalize nicely in the panty isle ;)

Shauna Quintero said...

Oh the seizure puzzle. What fun. Wanna start a Seizures Suck Club? Or maybe The Green Panties Club? The decisions we have to make - the lesser of two evils. I'm right with you in a different form.

I'll be thinking about you both tomorrow.

((HUGS))

Lowrie said...

Every single day my Dad prayed for Sam. Now that he's in Heaven with your Poppa, I'm sure they're bending God's ear to help your little sweetie!

We love you all so much!!

Judith said...

I'm praying, too. All my love,
Judith

helen said...

Praying new approach to Sam's diet will be successful.
Keep the faith.
Please take care of yourself.
Blessings to all.

MJ Morgan, Writer said...

My vote's with the Green Panties Club! Your powers of rationalization are, indeed, amazing. In the pantie aisle and elsewhere! Prayers, positive vibes and lots of love coming your way from here.
Hugs,
Mj